Raves, Rants, and Ramblings

Thursday, 25 June 2009

  • Apparently, I am an "autisiphobe"

         So, there is a nasty little war going on over at Autisible.com between someone with HFA and a dear blogger bud of mine.  I stepped in to say I will miss this person who has always been very supportive of me and my efforts to help my son make the most of his life. 

         For that, I have been called an "autisphobe" and accused of "extreme disdain" towards all those with PDDs.

         I guess that is why I have always refused to put my son in an institution or group home.  I suppose that is why I have worked tirelessly to learn his educational rights and fought so hard against insurance companies for better medical care for him.  That must be why I am so active in his education, going over his IEPs and looking for areas he isn't progressing in so I can work with him at home to acheive those goals.  Surely, that is why I have served as a volunteer in every class he has been in.  Certainly, it is why I have acted as a mentor to other parents of newly diagnosed children.  It also explains why I send out so many emails to politicians asking for more funding in the areas of supported and assisted living through out all life stages. 

         Wait a minute.  That makes no sense at all!  If I hated those on the spectrum then I would have dumped my son off on any one or any agency that would take him.  I certainly wouldn't have done any of those other things and I probably would have had my tubes tied so as to not risk having another child on the spectrum. 

         I guess the person who accused me of hating those with ASD has no idea what they are talking about.  Yep..that makes so much more sense.

  • Personality: Where Does It Come From?

         Many people on the Autism spectrum credit their Autism for their intelligence and personality.  While they strive for a "person first" attitude from the public, they insist that every fiber of their being is wrapped in their Autism and to separate them from the Autism would alter them in ways that are undesirable and maybe harmful.  I respect their right to their views.  After all, they have ASD and I do not.
     
         At the same time, I question the accuracy of such views.  What are they based upon?  Many people are brilliant without having ASD.  Many people are funny, sweet, adventurous, anxious, depressed, etc without having Autism.  For every autistic trait there are countless other individuals who experience that trait without having ASD.  For every personality trait, there are people who experience that trait with and without ASD.  Since there is no cure for ASD, who is anyone to say how it would affect personality or intellect?

         I happen to think my son is smarter than most give him credit for being.  He is an excellent problem solver when motivated.  He taught himself to read phonetically rather than using "sight" words.  He has an excellent sense of direction.  We can be any where that he has been even once and he knows which direction his favorite eateries and stores are located.  At some point in his academic career, he was given a calculator for math but his new school is teaching him touch math and he has done beautifully...even to the point of being able to do without it for all one digit addition and subtraction and some double digit numbers.  He can't play an instrument but he loves using his drinking straws for drums.  He even has certain straws that he uses to make certain noises.  He keeps a beat.  He sees me crying and he tries to comfort me.  He is funny.  He will lightly stamp your foot and wait for you to jump and down and say "ouch" and he will do the same if you touch his feet.  He loves to tickle and be tickled.  He is affectionate, freely giving hugs to those in his inner circle.  He is an adreline junkie.  He loves roller coasters, swimming, water slides, and boating. He also loves to travel and see new sights.  He hates loud noises and the other children in his class scare him when they have melt downs.  Finally, he is academically lazy. Some might try to convince me that he is all of these things because he has Autism.  I say they are wrong.

         You see, my son's personality is this unique and delightful blend of me and my husband.  Alex has all of my spunk, passion, and attitude but he also has his father's charm...making him much more likable than I am.  I happen to think my husband is brilliant.  He has tested out of classes he has never studied.  His math skills far outweigh my own (which I admit isn't that hard to do) and he has  lost none of it in the more than 20 years he has been out of school.  He can play a few musical instruments.  He has an excellent sense of direction.  He has also always been academically lazy.  Both my husband and I love to travel and have inner adrenaline junkies.  We love swimming, water parks, and roller coasters.  I don't care for boating but my husband enjoys it. I also have problems with loud or repetitive noises.  Some bother me so much that I find myself doing whatever possible to leave the environment.

         Each of my son's most endearing traits can be directly traced to either myself or my husband.  Even some of his less endearing traints such as trying to sneak his way of school work or being stubborn can be traced to us.  Neither of us are anywhere near being on the spectrum.  Knowing that much of my son's personality can be traced back to us makes it difficult for me to believe that if a cure were available, it would change the very foundation of  who he is. 

         My son has a lot going for him and alot working against him in life.  I hope that when he thinks of himself, he thinks of himself as more than his diagnosis.  It would sadden me if he was so wrapped up in a word that he thinks that one word is all that defines him and without it he wouldn't have a life worth living.

Wednesday, 17 June 2009

  • Standing Still and Flying By

         Alex's diagnosis may seem like an eternity ago when it was actually only 12 years ago.  One of my early thoughts at that time was that I didn't want any more children.  I thought that if I had another child and he or she also had Autism that I would feel a world of guilt.  On some level, I knew that Alex's life would be filled with challenges and heartache and I just didn't want to do that to another child.  It had nothing to do with not loving him or accepting him.  He was and still is the brightest light of my life.

         The problem with my decision to never have another child was that it broke my heart.  Ever since I married my husband, I wanted a large family.  I admit that as an adult, I wanted to create the family I never had as a child.  I also thoroughly enjoyed being a mom.  Of all the adventures I have had, being a mom is by far the greatest.  It is what I do best.  So, for over a decade there was an empty space inside of me. 

         It was in the midst of trying to have another baby that my marriage fell apart.  They say the wife always knows but I had no idea.  I would feel like an idiot, but when our friends and family found out what was going on, they were just as shocked as I was.  It took almost a year to even begin to put the pieces of my family back together again.  That was four years ago.  Like Alex's diagnosis, it sometimes feels like an eternity ago but there are days where it seems like it was yesterday.

         My daughter, Leyla, has been with us for just over seven weeks.  When I think about it, it seems like she was born just the other day but when I look at her, it seems like she has been a part of my family forever.  In seven short weeks, she has wrapped us all around her little finger.  Even Alex, who would answer for months that he did NOT want a sister (or a brother) will now answer that he likes her and even loves her.  When I asked him the other day if he liked his little sister, he not only said that he did...he reached over and gently stroked her hair. 

         I don't know why, but it fascinates me that time can stand still and fly by all at once. 

Thursday, 04 June 2009

  • Seeking Help When Needed

         I have suffered from depression for most of my life.  I have sought help for it off and on through much of my adult life.  I haven't needed treatment in four years and when my OB and the hospital Social Worker grilled me on Postpartum Depression, I nodded my head while pretending to listen and assured them I was fine.  Of course I was fine, I had delivered less than 48 hours prior...I was still pretty out of it from all the meds for my blood pressure and painkillers for the C-Section.  After all, the two years after Alex was born were the happiest of my life...poo poo on the PPD!   I am not nodding my head now.

         My darling Leyla has been with us for almost 6 weeks.  Things started out great with my husband and I working as a solid team.  Then he was switched back to the night shift and Leyla decided that would be her difficult time of the day.  Since then, my husband has tried to help but I am afraid he is as exhausted as I am and isn't much help. My mom, who volunteered to fly out and visit as soon as her granddaughter was born has come up with every excuse in the book to NOT visit.  I even offered to buy her plane ticket.  NOPE. There is always a reason and they are always stupid.  I am waiting for her to claim that she is waiting for Chicago's swine flu problem to lighten up.  I think I have finally written her off.  I just can't take anymore of her bullshit empty promises and her issues with not letting go of a delusional past.   My son finally got an appointment with the only pediatric orthopedic surgeon on our insurance list and it is as we feared.  He has a bone deformity in his femur and tibia and will require surgery.  We are looking at doing that next week while he is out of school for two weeks of summer vacation.  I also haven't spent more than five minutes with him since Leyla was born...enter UBER amounts of crappy mom guilt.  My mother in a law and brother in law (he also has Autism, like my Alex) are flying in tomorrow for a week long visit.  Guess who isn't her favorite daughter in law?  My husband was only able to procure one day off while she is here so guess who gets to bear the brunt of that visit?

         Enter the depression.  Is it PPD or is it just my regular depression popping up to make me feel like a crappy mom?  I haven't spent any time, much less quality time with my son and I cry damn near every time I pick my daughter up.  Did I mention the guilt I have over HATING breast feeding?  Yeah, I really hate it but I guess that is a topic for another blog. 

         I have a late 6 week postpartum checkup on Tuesday and I will be bringing up the PPD/regular depression topic immediately.  It is time to admit that I need help and ask for the Zoloft.

        

Pulse

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Chatboard (2)

  • i am not sure about this chatboard thing, but i since you get sooo many comments, i thought you might notice this as different (i will post it on your regular area as well, just in case)....i would love to pick your brain a bit....i am a special education student and would like to ask a few question
  • thanks . TEll me about yourself? I hope your not boring

Memories (1)

  • CleetusLiquor
    It was the Friday after Thanksgiving. I had just taken a test, and ACED it by the way! I was very excited to get out of school that day. I had a mission. I got out early...around noon or so. Through alot...and I mean ALOT...of logistical nightmares with renting a car, me and a buddy of mine got