Thursday, 25 June 2009
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Apparently, I am an "autisiphobe"
So, there is a nasty little war going on over at Autisible.com between someone with HFA and a dear blogger bud of mine. I stepped in to say I will miss this person who has always been very supportive of me and my efforts to help my son make the most of his life.
For that, I have been called an "autisphobe" and accused of "extreme disdain" towards all those with PDDs.
I guess that is why I have always refused to put my son in an institution or group home. I suppose that is why I have worked tirelessly to learn his educational rights and fought so hard against insurance companies for better medical care for him. That must be why I am so active in his education, going over his IEPs and looking for areas he isn't progressing in so I can work with him at home to acheive those goals. Surely, that is why I have served as a volunteer in every class he has been in. Certainly, it is why I have acted as a mentor to other parents of newly diagnosed children. It also explains why I send out so many emails to politicians asking for more funding in the areas of supported and assisted living through out all life stages.
Wait a minute. That makes no sense at all! If I hated those on the spectrum then I would have dumped my son off on any one or any agency that would take him. I certainly wouldn't have done any of those other things and I probably would have had my tubes tied so as to not risk having another child on the spectrum.
I guess the person who accused me of hating those with ASD has no idea what they are talking about. Yep..that makes so much more sense.
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Comments (2)
i saw that over there and i thought it was really sad. sad for her to leave because of some people that disagree with her thoughts and beliefs.
@SpongeBobScaredyPants - I find it sad on two levels. First, for Xanga (okay, mainly me) to lose such a supportive voice is a shame. Second, it is sad that there can't be a meeting of the minds. While I do not think a cure would do the damage that many with HFA say it would..I completely rspect their right to shun a cure. I do try (and I am sure others do as well) to understand where such opinions come from. I wish that people who diagreed with those who want a cure would stop and realize that we aren't trying to harm or even alter the foundation of our loved ones. I also wish that those who seek a cure would better clarify what they hope to achieve with a cure. Personally, I just detest my son's future dependence on government and taxpayers who dont' give a rat's behind whether my son is happy and cared for or sick and homeless and miserable.
There has to be a middle ground. The fact that those who do not want a cure and those that do want a cure can't or won't seek such a ground is sad to me. If everyone could step back and think of what they have in common, they might just be surprised.